A little bit different to my usual posts but seeing as it is International Nurses Day, here is a poem I have written: There was a nurse To hold my hand And wipe the tears There was a nurse To calm the nerves And cover the fear There was a nurse To walk beside And … Continue reading There Was A Nurse
2020 has possibly been the most challenging year for every individual. Not being able to see family, working from home, isolating and schools being closed. But for many, life still had to continue, Drs, Nurses, Surgeons, cleaners and key workers, still went to work everyday with so many risks. As many of you reading this … Continue reading 2020 – The Year to Have a Transplant!
*WARNING* In this blog post there are pictures of human organs. Everyone at some point or other should discuss Organ Donation with their family and friends. Although it can be a daunting conversation it is so important for your wishes and desires to be fulfilled when your time comes. In those last few moments talking … Continue reading It Is So Important To Still Discuss Organ Donation!
On the 15th April 2020 we found out Jessie was in end stage liver failure, and as a family we started to discuss end of life plans. This was one of the hardest conversations we have yet to have as a family, there were lots of questions, lots of tears and lots of worries but … Continue reading We Finally Got A Liver Transplant❤️
Whilst many are in isolation for two weeks, or are working from home but continuing life as normal. Jessie falls into the category of the most vulnerable people. Waiting for a transplant means you have to stay as healthy as possible at any time, otherwise your transplant could get denied. As I have said before, … Continue reading Covid-19 and Living With a Life Threatening Illness
So... since my last post Jessie was discharged from hospital after surgery on Monday 17th February 2020 at around 2pm and we made it roughly 19 hours at home! As I have stated before, with liver failure comes a line of complications. Jessie has portal hypertension (an increase in blood pressure within the portal venous … Continue reading Life is hard… especially as a six year old with a life threatening iillness
Since starting this blog a lot has changed. In May 2019, we found ourselves in the most difficult position we have ever been put in. Jessie was diagnosed with kidney failure secondary to liver and bowel failure. He became distressed very quickly, refusing to take any medicine and it was clear his health was deteriorating … Continue reading I’m Back and ready to tell you about our Journey so far…
When in hospital, you find yourself approaching the Costa counter maybe, two or three times a day, grabbing a hot drink and something sweet. What we underestimate is the cost of living when in hospital. Not only is this a financially burden, it is also very unhealthy and makes some of the most stressful situations … Continue reading Lets talk about money…
Having a child of any age in hospital can be daunting for a parent or family member. It is extremely tiring, even when you are not the patient - it's scary, lonely, isolating and expensive. We all naturally dread a hospital, doctors or dentist appointment, but for five year old Jessie this is a regular … Continue reading Jessie’s Journey: An Introduction