2020 – The Year to Have a Transplant!

2020 has possibly been the most challenging year for every individual. Not being able to see family, working from home, isolating and schools being closed. But for many, life still had to continue, Drs, Nurses, Surgeons, cleaners and key workers, still went to work everyday with so many risks. As many of you reading this … Continue reading 2020 – The Year to Have a Transplant!

It Is So Important To Still Discuss Organ Donation!

*WARNING* In this blog post there are pictures of human organs. Everyone at some point or other should discuss Organ Donation with their family and friends. Although it can be a daunting conversation it is so important for your wishes and desires to be fulfilled when your time comes. In those last few moments talking … Continue reading It Is So Important To Still Discuss Organ Donation!

Covid-19 and Living With a Life Threatening Illness

Whilst many are in isolation for two weeks, or are working from home but continuing life as normal. Jessie falls into the category of the most vulnerable people. Waiting for a transplant means you have to stay as healthy as possible at any time, otherwise your transplant could get denied. As I have said before, … Continue reading Covid-19 and Living With a Life Threatening Illness

Life is hard… especially as a six year old with a life threatening iillness

So... since my last post Jessie was discharged from hospital after surgery on Monday 17th February 2020 at around 2pm and we made it roughly 19 hours at home! As I have stated before, with liver failure comes a line of complications. Jessie has portal hypertension (an increase in blood pressure within the portal venous … Continue reading Life is hard… especially as a six year old with a life threatening iillness

I’m Back and ready to tell you about our Journey so far…

Since starting this blog a lot has changed. In May 2019, we found ourselves in the most difficult position we have ever been put in. Jessie was diagnosed with kidney failure secondary to liver and bowel failure. He became distressed very quickly, refusing to take any medicine and it was clear his health was deteriorating … Continue reading I’m Back and ready to tell you about our Journey so far…